Video would help…..

I guess it would help if the video had uploaded properly for her cheerleading in my last post…..

I think I fixed it and it should be there now…… I hope lol……

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This is what my girl does :)

This is a video from Juju’s latest show!!! 

It’s her cheerleading routine that she and the rest of her special needs team perform.

Here they were performing in a fundraiser show that helps Wiaih. An amazing organization that does so much for special needs families…..

They are an amazing group and they are amazing in what they do ☺️☺️!!!

Enjoy!!!


Snuggle time ☺️


Hubby is out tonight with work, so I get to relax with Juju to help her fall asleep :).

We are making a bit of progress with working on getting her to sleep in her bed :).

One of us still has to stay with her until she falls asleep, but at least we are getting her to fall asleep in her bed / so that is a huge step!!!

It’s going to take many steps to get her to sleep in her room in her bed on her own, but that is ok. One step at a time, even if they are baby steps 🙂

Good night my sweet Juju 😘😴

My little Elsa ❄️


This girl of mine is totally Frozen bonkers lol.

She has the whole wardrobe right down to the underwear and the hair clips. She even has a long Elsa braid that she can put in her hair with a clip 🙂

She also has a cap with an Anna braid coming out the hole in the back lol.

Yep, she is completely and totally into Frozen.

She has the dvd, which she is watching, using her Frozen headphones while sitting in her Frozen chair 😋….

At least she is crazy for a movie that I don’t mind ☺️…..

This is great for sick kids – especially autistic ones….

I love Amazon.ca! I can always find just what I need there whenever I need it :).

I always have a really hard time taking Juju’s temperature, and the only way she’ll let us test it is on her forehead.

I was looking on Amazon for a new ear thermometer and found one even better ☺️☺️☺️

I’m so excited as now taking her temp when I need to will be so easy and comfortable for her 🙂 :)!!!!


The screen even lights up green for a normal temp reading, yellow for a low fever and red for a high fever.

And everyone in the family can use it and since it’s no contact, there is no worry about passing along germs and having to thoroughly wash it in between uses!!!!!

Brilliant ☺️🌟👍🏼!!!

Going to have a tired one tomorrow….

I’m going to have a very tired little one tomorrow :(.

Her dad is away in TO for work and she misses him, so of course, she can’t fall asleep.

We’ve been trying to get her to fall asleep since 7:45pm and only about 10:13pm did she finally fall asleep.

She is going to be one tired sweetheart tomorrow, and that is going to make for a very long day….

I really hope she will be ok in the morning…..

Going to be a day and a half…..

Usually right now I’m preparing myself my first cup of coffee.

I’ve brought Juju to school, come home and cleaned up a bit and now getting ready to get some steps in while I enjoy my coffee….

This morning however, I am now actually starting my second cup of coffee… I think it’s going to be one of those days….. Oh boy……

PedDays really don’t help:(

Getting Juju off to school this morning was really, really hard :(. 

The day off on Friday put her in even more of a “I’m afraid to go” mode this morning…

I woke up with a migraine and that really didn’t help either. I rested a bit to get my migraine somewhat under control and then I worked on prying her out the door.

When I got back from driving her though, my migraine was worse than it was when I woke up :(.

We had our second therapy session tonight and it is a relief to know that we are getting help with this and we are working hard to make the situation better.

It’s going to take time and a lot of emotions, but we’ll get there…..

Let’s see what tomorrow morning brings….

It’s Monday morning tomorrow and that means back to school for Juju. And going to school on a normal morning is already hard enough…. Now I’ll be trying to get her in after this being a 3 day weekend…..

She told me earlier that she wanted to try and see if she can take the bus in the morning to school. I told her it’s always good to try, and if she can’t tomorrow then we try again the next day.

She seemed pretty confident up until a few minutes ago, and then it started to unravel. I had a feeling it would. It’s ok though, we’ll keep working towards it 🙂

For now we work on one thing at a time and right now that is getting her to be less afraid of going into school.

The more self aware she becomes, the more fears she gains.

It’s really hard to help her with this as I also have the same feelings and it’s really hard to push past mine in order to guide her…

We have engaged a therapist now, so we are going to get help with this 🙂

Taking a cat nap :)…


She had a pretty good day today ☺️!!

Seldom does she do so much in the day that she passes out on the couch 😴😴😴

She had a great day with her dad today! It was a father&daughter day. Spent the morning together and he made her breakfast I bed.

After wards it was a trip to Funtropolous! She loves it there. It’s like a McDonalds play place only about 20+ times the size lol 😋

And if that wasn’t enough, she came home and her friend from downstairs asked her to play.

So out they went into the back yard and again her dad joined in :). They all played games and ran around outside in the backyard for a good 1.5 hours 🏃🏽🏃🏽🏃🏽.

Then to complete the recipe for sleep – a nice warm, long bath 🛀🏼.

She came out of that and I don’t think 3 minutes went by before I heard her snoring on the couch lol.

She might even sleep most of the night now. I’m not sure on that though. I really hope she does and that she doesn’t wake up at 10pm and not be able to go back to sleep……

I’m just super happy that she had such a great day with her dad ☺️❤️🏃🏽!!!

Two opposites in one day…

Juju has a lot if sensory issues and they are strong higher up in her body, especially her head.

She is very particular in what hairstyle I can do for her. I can make tight ponytails, but they have to be almost at her neck. I have to make it as “down” as I can. She can’t handle it if there are even two finger spaces under it.

And trust me I have learned how to do the perfect one through many tries and remove and try again….

This afternoon she came to me and surprised me by asking me to put a whole bunch of tight braids in all over her hair. I was shocked and made sure she really wanted me to do this…

I have attempted this before and gotten as far as the first braid at her temple and she couldn’t handle it. It has been a while since she has asked though.

So I had her choose her holders and I proceeded to make as many braids as I could get in…. And she actually let me do it!

I was blown away!

I am so proud of her! This is a wonderful accomplishment!

And she actually kept them in for a couple hours 😊

She wore them outside to play and when her friend joined her she was showing off her braids to her friend :). She was so proud of them :)!

After a little while of playing her friend had to go inside for supper. Juju was invited to go downstairs and join them…

Juju has had a very hard time going different places lately, even familiar ones like school. This friend of hers lives one floor down from us in the basement. But Juju is terrified to go down there if I don’t come with her 😦

So I had to stop the chores that I was doing and take her downstairs. She wanted to go, but she was so afraid she was shaking and I practically had to drag her down the stairs :(. Even though she has gone down there to play with this friend quite a few times, she is always scared to do it without me or her dad….

She stayed right next to me for the first 20-30 minutes that we were there before she even willing to think about freely moving around.

She has gotten much worse in this way. At least before as long as we came with her she was ok to do things as long as she could see me or her dad. This time she had to stay close enough to me that she could touch me :(.

After a while she left my side, but asked me where I was going anytime that I walked around. She was so afraid I was going to go back upstairs and leave her there :(….

   
 

I hope it gets easier soon…

Instead of it getting easier, it’s getting harder and harder to get her to transition into school 😦

She is very afraid of something, I’m just not sure of exactly what. It’s probably a combination of a few things and not just one single thing.

It took me over an hour this morning to get her to put her socks, shoes, and coat on. Then another 10 minutes to get her into the car, and a battle again to get her out of the car once we got to her school. The poor thing was shaking as I took her into school 😦

Tomorrow she has library and gym. Two things she loves, so I’m hoping that will make it a bit easier to get her into school tomorrow…..

A new week begins…

Tomorrow is Monday.  So far Monday’s haven’t been pretty good days.  First she was sick a few Monday’s ago so obviously she didn’t go to school.  Then once better, she completely went backwards emotionally and was afraid to go to school all over again.

She hasn’t had that issue since last summer/fall 😢.  It’s so hard so see her go through that again.

For the past few weeks since the end of Spring Break it has been the hardest battle to get her off to school.

I’m running out of ideas on ways to try and ease her fear and anxiety.

Any day off – even weekends – messes her up again…. It’s frustrating because I just don’t know how to help her through this.

I just hope that tomorrow is a bit better than the past few Monday’s have been…. 🙏🏼

It’s completely crazy how much damage a week can do 😔

Juli was doing really great before the Spring Break and then it all went downhill from there :(…

Almost everything she had mastered went completely downhill.  She went totally backwards.  I’m not talking a bit backwards in one or two things, no, I’m talking about backwards in almost everything she does.

Time off has set her back a bit before, but this is the worst of it yet….

She used to be ready to walk out the door and head down to her bus before I had finished getting dressed. Now I have to start telling her to get ready half an hour before her bus, and try to calm the complete fear that takes over 😦

She used to love taking the bus, now very afraid….

Everything down to the smallest detail has changed, and I’m trying to figure out how to help her